Welcoming Persons with Special Needs in Church - Part I Youth Groups

Ben on the banks of the Severn River, USNA, 2013.

Have you ever been alone, really, really alone in a HUGE CROWD of people who are having a blast? Many persons with special needs live like this every day, feel like this, no matter where they are at, even in Church youth groups.

I have been musing for a long time on what it means for the church to include persons with special needs – or for that matter, what it REALLY means for the Church youth group to include everyone.

This is not an indictment of my church, which does as well as any other church on this issue. This is a commentary from the 'inside' to people on the outside as to a few ideas of how churches can include special needs persons in their activities without singling them out for an annual 'special needs event'. 

(Special needs events, while useful as fund raisers and for raising awareness, are in my opinion sometimes even damaging. They give people who attend a sense that they -- compared to others -- have 'done' something for special needs, but when the event is over, they, along with most everyone else at the event go home, FEELING GOOD, while persons with special needs are just as segregated and ignored as ever).

Today’s church is very segregated. We have age-segregated Sunday School, and then we have support groups for singles, for married couples, for college students, for young professionals, for young moms, for the elderly, or for those recovering from addiction, gambling, divorce, illnesses, etc. Much like businesses do it, churches ‘target’subgroups of the population and then ‘sell themselves’ to that group. That is how churches grow, by appealing to splinter groups with needs in society.

Nothing wrong with finding ways to get people to go to church, don’t get me wrong, I am all for that.

The problem with the age, ability, interest group mentality is that it often leaves out persons with special needs, who often when it is all said and done are so uniquely alone that they would comprise an interest group of ONE.

Some churches do successfully reach out to persons with special needs and do adult special needs events or youth special needs events, and that usually works for subgroups like persons with Down’s who are at about the same ability, or other persons who comprise a decent sized group, who have the same abilities roughly.

But for most developmentally young persons or adults with special needs, not only are there not enough of them at most churches to do a class or an event just for them,  more to the point, they are SO segregated most of their lives that what they really yearn for is not another once a year special needs event where they are center stage for a few minutes. They really just want to be part of a larger group. They don’t ask much; they just want to be included – i.e. recognized as human beings, the same way anyone else would.

My son, for example, LOVES to be included in everything, but because he has ‘needs’ that are … ahem… ‘special’, there are many things he cannot participate in either because they are too mentally or physically demanding and he does not have the capacity to keep up, or because they are too loud and too stimulating for his ‘autistic tendencies’. Recently he darted out of such an event at lightening speed. Something triggered him in the midst of the excitement of the young people around him --- something told him that everyone else was loud and laughing and having a good time and that he was SO not part of it, he just had to get out of there.

So what does it look like to include persons with special needs in our churches? 

1.    Less age segregation, more integration of everyone from the 90 year old with the walker to the 3 year old who can just about play Candyland with some proficiency.

2.    Center an ALL inclusive activity around

a.    Eating, and letting the person with special needs bring something he can share or serve to some of the people there.

b.    Simple dancing  (like Greek line dances) in a way that wheelchairs  or persons in chairs can feel part of too

c.    Fun singing (everone can sing)

d.    Various games, some of which anyone can play.
(Uno, Bingo, sack races, Monopoly Jr., Sorry) (Not super competitive loud games)

e.    Prayer time with candles and a quiet atmosphere

f.    throwing balls (big, soft, easy to catch balls)

g.    writing with chalk on a sidewalk

h.    baking cookies for college students far away

i.     writing cards of thank you or of encouragement.

j.    Clean up projects

k.     Raking leaves in the neighborhood

l.     Christmas caroling

m.  A simple nature walk

n.    Serving at the local food bank

o.    going to a G rated movie

And stay away from really competitive acitivities that get kids hyped and make kids who cannot keep up feel left out. Focus more on caring and compassion, on making room for those who do not ‘naturally’ fit in as well, and challenge the more gifted young persons of the congregation to ‘invent’ ways of including those who don’t naturally fit.

Make it structured (youth with limited communication skills are often lost in a group, and even more so if they perceive that everything around them is loud and chaotic).      

Try to find ways for the youths with special needs to ‘lead’ once in a while, be that showing everyone the way to where they are going, serving part of the food, or calling everyone to order with a big whistle.

Make it short enough that there is a clear end point to the activity, where youth with short endurance can leave without feeling that they were pulled out in the middle of something that everyone else got to continue in. Once they are gone,  typical youth can linger longer as they choose.

And one thing Ben’s teacher  at high school recently suggested to me: ‘front load’ the youth with special needs. I.e. tell him and his caregivers in advance what the topic for the evening is, so the caregivers can help the youth with special needs participate and feel included right from the beginning of the event. For example, if a person, like my son, communicates through a communication device, the device can be programmed in advance with 2-3 things he is going to say about the topic, so that he actually has a living chance to feel like he is talking with the rest of the group.

Youths with special needs BELONG in our churches, and if they belong, we need to make room for them. 

Making that room is difficult because it requires forethought. It is not enough simply to assert that Ben is welcome there 'any time', when the fact is that most activities are not inclusive enough for him to participate in, and also, he cannot be there without a support person to help navigate his emotional mayhem if things get loud and he does not understand what is going on.

In order for Ben to even begin to function in a group setting, we/I/the leadership have to make sure that nobody is too loud (or he runs away and hides), that we have ways of making him feel that he contributes to the group (or he will think that every time anyone laughs, they are laughing at him), and finally, I have to pick only events where there is no overt competition or hype, or he simply cannot handle the experience. (This of course means that he cannot come every time, but perhaps we can have a few events every year that are closer to his needs where he can come and join the group as an equal participant). 

Ben does best when all ages are included, that is, when the atmosphere is collective and collaborative, not competitive. And seriously, I think that is more so what the church is about than it is about competition. (IN fact, WHEN should church ever be about competition?)

I wonder, for every Ben who cannot function in a competitive environment, how many young and otherwise ‘normal’ boys and girls likewise sit and cringe because they feel left out, and frankly embarrassed at their inability to fully participate in the games and activities  that are super fast and super loud.

The Church is a house of prayer where we worship God corporately, be we young, old, big, small, able or not able. That corporate spirit should permeate every activity the church undertakes – that sense that we are all here, we are all welcome,  and there is something for all of us to do to feel part of this family. 

It is not enough for me to SAY that someone is welcome. If a person is on my doorstep and I tell him he is welcome to walk in, but I don’t gesture, open the door wide, show him a seat, and offer him, at a minimum, a drink, my actions are in fact belying my words. He is not really welcome because I have not made room for him.

 'Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.' Matthew 25:40

Special Needs and Worship will be the next installment.

Benjamin - the artist

Did you know that Ben is an artist?

Ben is 18 years old, and not only is he an artist, in many ways his life is a work of art. He has his own special style of dressing, his ties and bow ties, his shirts. He loves hats, It is very important to his self-expression and daily functioning that he wears the pieces he puts together, so he looks the way that he best feels expresses who he is.

His life is a mosaic, it consist of fragments--some with sharp corners-- of health, illness, ability, disability, joy, sorrow, comfort and pain. Some events on their own may not make sense, the pain is too intense, the loss too severe, but as a whole, when we step back and look at his life --- well, this piece of his, which I call the wheel of life, may express it best:

I ain't no art critic, but to me the balance of colors, the subtle pastels and the grays, the big fragments, the little pieces fit together in a beautiful whole that inspires hope with its beauty. I love this wheel and it hangs in our livingroom right next to Mirabel's Stair Case in Provence. Perhaps you can see why.

Ben's first major introduction to art in high school has come from a wonderful pottery course he has taken a couple of times at Broomfield High School:

We put tea candles in these and use them on our dining room table.

I think the fruit bowl is my favorite, handy, useful, and beautiful all at the same time.

We keep our Holy Water in this pottery basket.

Ben's own tea mug, It is huge.

Pandora's Box - so named by Nikolas Jaqua, who received this for Christmas last year.

The pinnacle of his pottery work -- Ben's teapot.

Watch the colors in this mosaic:

There is both storm and calm in this paint on canvas:

Colorful and large, water, sky, and tree. This one is in Ben's room.

Ben also took a graphic arts course:

Animals in the Arctic

The MOVIE poster, and ...Yes, he is ONE IN A MINION :)

The artist's self-portrait in quadruple.

Self-expression is extremely important for those who struggle to communicate with the mainstream of society. Ben has a strong need to express himself. Art is, perhaps, his most effective medium. He is meticulous with his art and can spend hours on details. He will not quit until it looks the way he wants it to look. Yes, he also has the frustrated artist's temperament that growls and throws his hands up in the air when the medium will not comply with his intents, but he sticks it out, and you see the result -- Beautifully done, thoughtful, detailed, meticulous, expressive pieces that bring out, not just the almost-non-verbal young man that most of the world smiles at but often ignores. Here is a deeply-feeling, compassionate, and alive human being whose works in clay, color, and on the screen give us a glimpse into an intricately artistic mind and soul.

Thank you, Ben!

The best shot of Ben, ever!!

[Michelle took the top and bottom pictures of Ben at school and sent them to me. I took the others with my iPad (next time, I will use my camera instead for higher quality)]